There may be a bit of sarcasm in that title…
Nothing sinister was found in my scope, but no real explanation for my symptoms either, so I’m stuck with a very restrictive diet for the moment.
My disabled daughter B finally got her neurology appointment, it means she has a lead hospital consultant now, who is really interested in her, which is good. Not so good is the news that she is having small brief seizures – she actually had one during the consultation. So she’s now on a low dose of medication that will hopefully ensure they don’t develop further.
On Wednesday B got her therapeutic Botox injections that help reduce the stiffness in her legs, which could get progressive without her comprehensive medical and exercise management programme. It was less than a week after an Irish celebrity received cosmetic Botox live on Ireland’s premier TV chat show, and I felt the feature was such a missed opportunity to cover its other uses – and my daughter would probably have loved the attention of live TV, if she could’ve had her treatment at the same time!
Today is the wheelchair assessment and another protest in support of disability rights outside Irish Government Buildings.
And in really good news, I have the following reasons to be cheerful:
A new goal, doing a parkrun with B, inspired by BuggyWalks Ireland.
Possibly joining the no beer for a year campaign, inspired by my blogging friend Kate Gunn in the Irish Independent.
Eldest bought B an unbirthday present of a mermaid blanket for floor time especially when it’s cold. Pink of course, and she looks soooo cute in it…
B has started wanting to share my dinner even when it’s not red (ketchup) or brown (chocolate) culminating in her eating purple coleslaw on Monday!
A hospital visit and finding a free and available parking space easily in the adjacent cul de sac. I think hospital car parking charges are an insult to sick people and I hate paying them so that was a win.
And finally, look who was thrilled to be back at the Rainbow Junior Arch Club this week.
Have a great week, and why not check out more cheerful posts over at Mummy from the Heart.