Hot wheels and cool news

You know how much my disabled daughter likes her adult programme right? Well I can tell you now that it has been rolled over for another year. Getting the news is great in all sorts of ways.

Timing – confirmation of her original placement did not happen until the week before she was due to start in September 2015. That was the fault of the Irish Health Service. This year they have hit their target of informing me before the end of May.

Future – there’s no certainty yet about that, but this year’s roll over is a hopeful sign apparently – either that her place will be confirmed indefinitely or that it will be confirmed on an annual basis. Here’s hoping!

This week also saw the staging of The Lion King, a special production that a group of disabled adults have been practising for all year: it was a mixed ability group, including some with speech and some with mobility. It was great fun to watch and B totally enjoyed taking part. As with last year’s Christmas play 😀

Christmas, The Lion King, Play, Angel, Bird, B, Smiley,
And today was another milestone day: after an 18 month wait, B finally got the chance to try out a power chair. I am really excited about this as she used to love using a walker when she was a child, and later driving her chair in school on the AKKA,  which is an electronically controlled mobile base that uses photo-electric sensors to follows a predetermined route, and the wheelchair user can control the movement using a switch like the yellow one in this old photo collage:

AKKA, Smiley,

A power chair for B would have dual control, so her carer could both prevent collisions and also use the power to take the strain of pushing, which could become very difficult for me as I get older. B was a bit unsure today, but hopefully she will love it once she gets used to the idea.

Power chair, first try, B, Smiley,

A little bit of freedom to make mistakes should be allowed too No-one wants to have everything controlled for them so I’m hoping the health and safety gods will look away occasionally and give her the chance to learn and maybe even break a few rules…

 

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9 thoughts on “Hot wheels and cool news

    1. It really is exciting! I won’t get a timeframe until I hear from the therapist who will be training her, but there’s no rush, she’s waited a long time for this, so I don’t mind how long it takes her to get used to it

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  1. I’m so happy for both of you that B will continue in the programme next year. I hate it that you have to face each end of year worrying that it might be her last year of it. Let’s hope they acknowledge that she needs this every year. xxx

    Liked by 1 person

    1. It would be great, but unfortunately at the moment disabled adults have no actual rights to anything, part of what I’m doing is trying to change that xxx

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