I didn’t listen to the budget, I can’t stand the usual self congratulation on apparent economic achievements that rarely seem to improve family life here.
My disabled daughter will be better off by €5 a week, as she will benefit from an increase in the disability allowance. That will probably be swallowed up by her contribution to the household energy budget, as electricity and gas prices are forecast to increase substantially in the next few months.
Apart from the €5 loose change, there was very little in the budget for disabled adults.
To find out the details, I watched a video issued by the Irish Minister for Disability. He’s getting an extra €75 million, and his stated priorities are emergency places, respite places and ‘day care’ for school leavers with intellectual disabilities. Also the upcoming Justice Budget will apparently include enough funding for the Decision Support Service for disabled people. None of these announcements fills me with joy.
Currently my severely disabled daughter B has a great adult day programme of activities, but it is only guaranteed for another 12 months. The Minister is promising more adult ‘day care’. Excuse me? My daughter does not need an adult crèche, Minister. That may have been a slip of the tongue, but it shows the mind set that is out there. A mind set that HAS to change if disabled people are to be valued as equal members of society.
So no change to that worry.
Emergency places are welcome, but for all the wrong reasons. They are the last resort to prevent adults with disabilities ending up on the streets if their carers die before them. Ideally there should be life time planning with a gradual transition from family home to some kind of independent living. The spectre of ’emergency’ placements means ripping people from their family homes, from everyone and everything they know and putting them in the care of strangers. I dread to think what that would do to my daughter, who would not understand why such a terrible thing was happening.
In the current situation more respite places would be welcome. But based on past policy decisions, it is unlikely that suitable places for those with complex needs like my daughter will be developed. She has had no respite for years. She needs it. She needs to feel safe sleeping away from home, and confident that others can meet her needs. For me, lack of respite means I’m missing an important disability conference next week and the first wedding on my side of the family for 30 years in early 2018. And most family carers would have similar stories to tell.
So probably no change there either.
On the decision-making service, I understand how important that is for most disabled people, but I’m not convinced that it will improve my daughter’s life given her lack of communications skills – instead I see it taking up time that could be better spent actually doing activities that she enjoys.
No positive change there either.
So excuse me if I’m not dancing with joy this morning. My daughter received a bit of loose change, but no real change for her, or for other adults with disabilities.