Conversion

It’s been a week of achievements, but I was finding it hard to convert them into cheerfulness. And then Saturday happened.

It began around 6am, as usual. Followed by a tough but enjoyable Parkrun at 9.30am.

Parkrun May 12 2018

Home again to collect youngest and head to his activity, B and I eating a packed lunch in the sunshine with good company again, while we waited.

Then back home so B could use the toilet, and gathering everything I needed to help my friend run the end of year party for all the special needs children and their families at the Rainbow Junior Arch Club. Exhausting but rewarding.

Finally there was an 18th birthday party of a family friend and BOTH my younger two came with me. We weren’t able to stay that long, but long enough to enjoy the pièce de résistance, a delicious birthday strawberry and white chocolate cheesecake 😍

For all this to happen I had to get my daughter and her wheelchair in and out of my van 16 times in the one day and hoist her 10 times (on my own which is illegal for anyone else).

More proof of why I need to keep fit and strong, so I can continue to give my disabled daughter and her siblings the life they deserve.

The rest of the week consisted of a bank holiday and four days of appointments, including B’s annual neurology and orthopaedic appointments. Reasonably good news from both of these: her seizure rate may have slightly improved and her physical condition has not worsened, so no change to medications or her exercise regime. Steady as she goes.

There was a big meeting on Thursday, which I can’t really write about on here. But if the promises made are fulfilled, they could make a big difference to the future of my children and my ability to cope too. Everything crossed! But I was so exhausted after all the appointments that I didn’t have the energy to feel cheerful, at least not until Saturday evening. Then the conversion happened, and suddenly I’m seeing last week in a completely different light 💙

R2BC at Mummy from the Heart 

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11 thoughts on “Conversion

  1. Last weekend I saw people on bicycles with quite hefty wheelchairs at the front – sort of tandems but with the person behind doing all the work. To operate such a contraption one must have to be incredibly fit and strong. And rich I would think – they looked very expensive! Do hope the hopes and promises you have been given all work out.

    Liked by 1 person

  2. You wear me out, I have no idea where you get all that physical and mental strength from but all power to you girl, you are amazing. You fitted so much into one day!! Great news re B’s check up. steady is always good. Fingers crossed you get the news/outcome you would like from your meeting xx

    Liked by 1 person

    1. One of my advantages is that I usually get a reasonable amount of sleep, if I had to deal with the amount of sleep deprivation that you face, I don’t know how I would cope xx

      Liked by 1 person

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