It’s been a week of achievements, but I was finding it hard to convert them into cheerfulness. And then Saturday happened.
It began around 6am, as usual. Followed by a tough but enjoyable Parkrun at 9.30am.
Home again to collect youngest and head to his activity, B and I eating a packed lunch in the sunshine with good company again, while we waited.
Then back home so B could use the toilet, and gathering everything I needed to help my friend run the end of year party for all the special needs children and their families at the Rainbow Junior Arch Club. Exhausting but rewarding.
Finally there was an 18th birthday party of a family friend and BOTH my younger two came with me. We weren’t able to stay that long, but long enough to enjoy the pièce de résistance, a delicious birthday strawberry and white chocolate cheesecake 😍
For all this to happen I had to get my daughter and her wheelchair in and out of my van 16 times in the one day and hoist her 10 times (on my own which is illegal for anyone else).
More proof of why I need to keep fit and strong, so I can continue to give my disabled daughter and her siblings the life they deserve.
The rest of the week consisted of a bank holiday and four days of appointments, including B’s annual neurology and orthopaedic appointments. Reasonably good news from both of these: her seizure rate may have slightly improved and her physical condition has not worsened, so no change to medications or her exercise regime. Steady as she goes.
There was a big meeting on Thursday, which I can’t really write about on here. But if the promises made are fulfilled, they could make a big difference to the future of my children and my ability to cope too. Everything crossed! But I was so exhausted after all the appointments that I didn’t have the energy to feel cheerful, at least not until Saturday evening. Then the conversion happened, and suddenly I’m seeing last week in a completely different light 💙