Creating a good life WITH my disabled daughter

‘Ordinary lives in ordinary places’ is the buzz phrase in disability policy right now, and you’ll have seen it before on this blog.

It appears to mean providing the supports and services that disabled people need to live independently in the community. But as far as I’m aware there’s no room in this policy for those with expensive high supports needs (severe/profound disabilities). The implicit assumption is that families will provide cradle to grave care and be responsible for ensuring that their loved ones enjoy a fulfilling life too.

I think that’s very unfair on my disabled daughter B, but for now I’m going to make best of it, and try to create a good life for both of us.

And this week we made a lot of progress.

Powerchair Training

On Wednesday I went to see B learning how to use a powerchair. It’s early days, but she has the most patient person I have ever met working with her. I’m so grateful she has been given this opportunity, and while she has a lot more progress to make, it was fabulous to see her reaching for the joystick, especially as it’s currently positioned in a difficult place for her to reach, due to her limited range of movement.

A dual control powerchair would give her more freedom, and conserve some of my energy too. So I really hope she succeeds in proving she can do this. I think she can.

Bowling

B enjoys bowling, especially with friends and when it’s quiet enough so she can hear the background music. It’s also one of the few sports she can do unaided, though when we went this week with the Rainbow Junior Arch Club, she needed a bit of hand over hand assistance to remind her what to do.

But I am not a fan! Especially as bowling alleys are usually hot, dark and noisy, and the sun always seems to be shining outside, where I’d much rather be. But a good life has to mean that I must try and enjoy B’s favourite activities, as well as bringing her to things I know we both enjoy – like music festivals. My eldest daughter always tells me that I can learn to love something if I persevere with it – she said it worked for her and green tea…. Going with the Club at a quiet time meant it was much more enjoyable for me, and I will try my best to go again.

Running in the Park

I haven’t taken part in an evening race for about 20 years, but I decided to be brave and try and run a 5K race pushing B on Thursday evening. It was organised by a friend of mine in aid of Snowflakes Autism, a local charity that helped one of my other children in the past.

It was like pushing a tank: her adult buggy definitely needs a service, and I might even ask Santa for a jogging buggy to make running easier still. But it was great fun and we even had some very welcome help along the way. And our time? 35 minutes and 22 seconds. Not too shabby ☺

So those are my reasons to be cheerful for this week: head over to Mummy from the Heart for more.

R2BC at Mummy from the Heart

A Family Affair at the Mini Marathon

How to explain the Mini Marathon and why it’s so loved by so many women? After all, isn’t it just a 10K race that takes place every June Bank Holiday weekend through the streets of Dublin?

Yet it’s so much more than that.

For me the highlight is the countdown to the start, with the nervous smiles among the runners, the anticipation, the watches being checked, water bottles discarded, goosebumps from the strains of Sisters, are doing it for themselves, and knowing there’s 30,000 more women at your back.

The Start Line, Mini Marathon 2017,

You feel like you’re part of something.

And you are.

It’s the biggest women only race in the world and one of the biggest charity fundraisers in the Irish calendar.

I’ve probably told you before that I ran it many times in the past, until life got too complicated! And that my first attempt was in 1992 when I was 5 months pregnant with my eldest. This week she walked it pushing her disabled sister, with the help of a couple of friends. And despite the rain that set in as I finished and they reached half way, we all loved the experience.

For me, almost everything went right. I wasn’t feeling well, but with the help of a really fast course, I crossed the line in a very satisfying 57 minutes and 15 seconds. Which means I qualify to enter as a runner again next year. And if I can keep that up, I will do it every year (once I have someone to mind my disabled daughter – or push her round for me).

And having something special to look forward to every June from now on is my  reason to be cheerful for this week. Head over to Lakes Single Mum for more.

A spoonful of sugar

I hope you’ve noticed all the positive posts on here? I’m trying really hard to stop moaning, and it’s helping me too. But the problems in my life haven’t evaporated with the summer sun, they’re still floating around and keeping my anxiety levels bobbing up and down.

I’ve been forcing myself to drink tea on shaky days, but without feeling much relief. In desperation one day recently I chucked in a spoonful of sugar as well, and the difference was amazing! Who knew that the biggest dietary enemy was just what I need to feel better? So finding something that helps is my first reason to be cheerful for this week.

And here’s a few more…

… I fixed the coffee machine. It had almost completely stopped working and I was considering throwing it out until my google searches finally revealed the solution to the problem. Result. And a great feeling of competence.

… After SEVEN years, I’ve finally got the garden looking reasonable and as low maintenance as possible. Well apart from my pots. Have to have a few flowers.

… A new low cost gym, a new Lidl and one of my favourite coffee shops are all opening just up the road. Perhaps I don’t want to move after all.

… Breakfast and a run on the beach with friends at a local seaside town.

Balbriggan beach, breakfast running,

… A mini holiday and a few outings when family visited for a long weekend.

Phoenix Park, family,

Lots of great news for my disabled daughter.

… After the training, the qualifying, the arranging, the day is finally here : I’m running in the world’s biggest women only race tomorrow, the fabulous Dublin Women’s Mini Marathon. Cannot. Wait.

Dublin Women's Mini Marathon,

… A fairly major birthday looms and I’ve decided to spoil myself a little bit. Watch this space 😀😀

Hope you had a good week xx

(Head over to Lakes Single Mum for more reasons to be cheerful)

 

The Great Race #greatirelandrun

“Aren’t you being a bit ambitious?”

That’s what I was told when I announced I planned to run a 10k in under an hour in 2017.

In all fairness, what the speaker could see in front of him was a fat middle aged woman swaddled to the nines in ancient running gear. Not an inspiring sight!

But what he didn’t know was that I have a track record of proving people wrong, and those words spurred me on over the past year as I slowly prepared to tackle the Great Ireland Run.

#GreatIrelandRun, 2017, me

You see I’ve been waiting to do this for more than ten years.  I tried in 2011, but didn’t make it across the finish line in under the hour. And this time it felt even more important. Age is not on my side, and 2017 was the perfect year for the attempt: my eldest is still living at home, my disabled daughter is loving her day programme, but it’s only guaranteed until the end of August, while my teenage son has no exams this year.

As well as that, the training went well: I had a partner in crime, my friend Lisa, and we pulled and pushed each other on many runs, often as part of Pat’s training group in the Phoenix Park – held in the mornings, so I can actually get there.

Lisa, Candi, Great Ireland Run 2017, the start,
Lisa and I on the start line

My eldest daughter looked after her brother and sister for me as I squeezed in random training runs whenever I could. And I also benefited from going to gym. It was not a heavy training schedule – no more than 3 1/2 hours a week in total – but it was hard, and I was stiff and sore for most of the past three months. But now I am slimmer and fitter than I have been in a long time, which will help me continue in my caring role too.

Race day was perfect, cool and calm and everything went to plan. Just as well, as the Great Ireland Run is not an easy course: You’d lose count of the number of hills, and I certainly slowed down to a crawl on the last one: so thankful to the lovely woman who encouraged me to keep going, and told me that I was still on track to make my target time. So I sped up as soon as the course levelled off over the last two kilometres, desperate for a sight of the finish line.

And then I saw it.

And the time read 57 minutes. I couldn’t believe it. First came the smiles, and then I was overcome when I finally crossed the line. I staggered to a halt and burst into tears. So of course the medical team rushed over with concern and a sick bucket! And I gabbled on about how important the day was for me. I expect they thought I was completely mad.

For the past 30 years, I’ve rated running the London Marathon as one of the biggest achievements of my life. It’s now been beaten.

Finally I have to mention the glorious Liz McColgan, whose winning 10K run at the Tokyo World Championships in 1991 is always at the back of my mind any time I felt like quitting. Thank Liz!

Adding this post to this week’s Reasons to be Cheerful linky because I’m still taking it easy after all that hard work on Sunday 😉

Five reasons I run

With two weeks to go until the big race, I’m starting to struggle. I’ve been training on and off for the past 18 months; I’ve been hurting all over for the past number of weeks, and I am so so tired. And I’m still not running fast enough to guarantee making my target time.

A bit of inspiration to remind me why I run was badly needed, so I came up with five good reasons to keep me motivated. And here they are, in no particular order..

Running for health and fitness gives me a justifiable excuse for leaving the house and the list, and getting out into the (reasonably) fresh air. Sometimes it’s very fresh, if I get the chance to go for a run in the park or along the sea front. It’s not a self indulgence, so I don’t need to feel guilty – but I still have to tell myself it’s okay.

It’s easier than dieting. No really, it is. With running you have to be mentally tough enough to resist stopping for about half an hour. And do that 4-5 times a week. With dieting you have to be mentally tough enough to resist eating all the time! Also I do lose weight when I exercise harder, which seems to go against expert opinion. I’m still eating cake, but I’ve lost about a stone (6 kilograms), and that makes me very happy.

Running gives my brain a break: I find it impossible to think about my worries when I’m running flat out, and it’s taking all my focus to keep my breathing steady and my legs moving.

It’s about adding something to your life, which has to be a bonus as I’ve found that getting older and becoming a responsible adult and parent seems to be mostly about giving up things.

I’ve always been competitive, and running gives me a chance to compete, against myself and others too. It’s good to feel you’ve achieved something, especially as there is very little sense of achievement or recognition when you’re a carer.

Five reasons I run, me, Essex,

So there you have it, and if you’re a runner too, I’d love to know what keeps you going and why you enjoy it…

 

Fat middle aged mum runs for her life

Okay so maybe ‘slightly overweight’ middle aged mum would be more accurate, but fat makes a better headline, right? Anyway, I’m 11 stone and a size 14 which is huuuuuuge by fashion industry standards and I have fat in places where no fat should be. Which is why I will never wear a bikini again!

rain-running-me-phoenix-park-2016

This is the fatter me recently, running in the Phoenix Park in Dublin. In the rain.

london-marathon-1987
London Marathon 1987, one of the best days of my life!

This was me in my mid twenties on a very proud day. But my running career had an inauspicious start.

Three years earlier I could’ve been voted employee least likely likely to run for a bus. My colleagues mocked my attempts at jogging, and when I announced my intention to run a half marathon they sponsored me large amounts per mile… But I got the last laugh, and a local charity did extremely well when I finished in just over two hours.

And I just kept going, joining clubs, running races, taking breaks and beginning again. Right now I’m training really hard for the 10K Great Ireland Run in April and hoping to break the hour — a big change from the days when I was trying to break 45 minutes! But I’m nearly there…

andrun-2017-02-21

So while I’ve been running on and off for a long time, others like Sinéad at Shinners and the Brood are just starting, with the excellent couch to 5K programme. Good luck to everyone who is beginning a journey to fitness in 2017, and here are some random running tips from a veteran…

All you need is a pair of trainers and a bit of determination to get started.

But you’ll soon want to spend some money. For comfort and to avoid injury you should invest in a good pair of running shoes bought from a proper running shop where advice is available. Plus a supportive sports bra (unless you’re a man, I guess!). And there’s lots of amazing, gorgeous and useful running gear now, with quick dry fabrics and even bum bags with water bottle holders!

Running on your own is hard to do all the time. I would definitely recommend joining a running group or club. You can find them via social media, sites such as boards.ie (Ireland) or apps like MeetUp.

A goal will keep you focused and keep you going. Whether that’s a regular 5K #Parkrun  or a marathon, it will help you leave the house on those days when you’d much rather slump on the couch with a tub of Ben & Jerry’s.

Variety also helps avoid boredom: take different routes, take photos when you need to stop. Try longer slower runs, or shorter faster ones. Try different locations and times of the day, running in sand or up hills will test you, but the scenery will be great, and there’s something special about running in the city early in the morning when it’s quiet and fresh.

Races are fun to test yourself and to experience the feeling of running with a crowd, getting a medal, a T shirt, and maybe raising funds for a good cause.

Struggling to find a babysitter? Run with a buggy. They are welcome at some parkruns and bigger races too. I slowly ran the Great Pink Run 5K course last year pushing my adult disabled daughter.

Running apps, love them or hate them, they can be motivational. Most people I know use Runkeeper.

Need a break from running? Take it. Your legs will remember the training you’ve done and it will be easier going back than it was starting out.

Running may not feel easy at first, but if you push through, you should get to a point where you feel comfortable running at a pace that’s right for you. You’ll enjoy the feeling of moving, of meeting other runners, of looking at the world around you, and the fresh air. Our bodies were made to run!

As for me, I’m running for my life. To keep me alive, to give me more energy for my children, to help me ditch medication, and to battle anxiety and depression, the life partners of many family carers, including me.

So to all the middle aged women out there who say they cannot run, I have this message: Yes. We. Can.